Team Watience
Hadi is the heart of "Team Watience," a term he came up with. He mixed determination and perseverance, making it our team's motto. It brought us together, making us strong and resilient.
Team Watience is proud to partner with NoVA Youth Ensembles
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About us
About Team WatienceWelcome to Team Watience – a heartfelt blog born from my journey honoring my son, Hadi. In this space, I navigate life’s challenges – from the heartache of losing a child to the complexities of divorce and a home fire, all within one year.
I’m a parent, bone marrow awareness advocate, proud Muslim, Kansan, mom of twins, warrior mom to an aplastic anemia fighter, resilient divorcée, event manager, and an authentic writer. Team Watience shares honest stories, embracing life’s raw moments. We believe in the power of resilience and find unexpected beauty in challenges. Join us on our grief journey, where diverse roles and shared stories connect us all. Life is a journey, and Team Watience is here to share, support, and inspire. Now, I want to speak up, speak out, and raise awareness on pediatric aplastic anemia. |
Aplastic Anemia
About Aplastic Anemia – A Rare And Serious Condition
This disease occurs when the bone marrow can’t produce enough crucial blood cells. These cells play key roles, such as carrying oxygen, fighting infections, and preventing bleeding.
Aplastic Anemia is categorized based on its severity – moderate, severe, and very severe. Understanding and raising awareness about severe aplastic anemia is crucial for those affected and their support networks.
Aplastic Anemia is categorized based on its severity – moderate, severe, and very severe. Understanding and raising awareness about severe aplastic anemia is crucial for those affected and their support networks.
Aplastic Anemia
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Common Aplastic Anemia Symptoms
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Donation
Even The Smallest Donation Matters Support the CauseJoin us in the fight against the little-known ailment, aplastic anemia. This rare condition often goes unnoticed, but you can make a difference. Whether through a monetary contribution or dedicating your time, there are several ways to get involved.
The Team Watience has the best fundraising ideas for nonprofits. Your donation aids in financing essential research, pushing us closer to discovering a cure. Additionally, we extend our support to aplastic anemia families by providing practical assistance, such as groceries, and even offering thoughtful gifts like Nintendo Switches. We also create care packages tailored for aplastic anemia patients, their parents, and caregivers. Your contribution, big or small, makes a meaningful impact. Help us make a difference in the lives of those affected by aplastic anemia. |
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Blog
I carried twins to term and I endured watching my child intubated yet returning a RedBox movie scares me. What if I don’t put it in right?
November 20, 2018 No Comments
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Yep, proud to be from Topeka, Kansas. I was all sorts of giddy listening to Harriet Lerner on Brene Brown’s episode and.
May 24, 2020 No Comments
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June 7th. Hadi and Zakari’s birthday. I always wanted to make sure my twins were seen as two separate beautiful human beings.
June 7, 2020 No Comments
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I am watching the Wonder Years and it’s fascinating how timeless of a show it is. Looking forward to being back in MY house.
June 20, 2020 No Comments
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Damn, Dave. You still move my soul in a way that’s indescribable. The words hit differently than they did back in college.
June 25, 2023 No Comments
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ISNA
Who knew that a quinoa cookie could actually be kinda tasty? Then again, I am exhausted in only the way ISNA can make you and I might feel differently
September 4, 2023 No Comments
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Frequently Asked Questions (FAQs) - Aplastic Anemia:
1. What is aplastic anemia?
- Aplastic anemia is a rare blood/bone marrow disorder where the bone marrow fails to produce enough blood cells, including red blood cells, white blood cells, and platelets
2. What causes aplastic anemia?
- Causes can include certain medications, exposure to toxins, viral infections, or it may be idiopathic (unknown origin).
3. How is aplastic anemia diagnosed?
- Diagnosis involves blood tests, bone marrow disease, and sometimes additional imaging studies.
4. Is aplastic anemia hereditary?
- In most cases, it is not hereditary. However, some rare inherited forms exist.
5. What are the symptoms of aplastic anemia
- Common symptoms include fatigue, weakness, shortness of breath, frequent infections, and easy bruising or bleeding.
6. Can aplastic anemia be cured
- Aplastic Anemia Treatment options include Low blood count transfusions, medications, and bone marrow/stem cell transplantation. Cure rates vary.
7. How can I support someone with aplastic anemia?
- Offer emotional support, assist with daily tasks, and help create a supportive environment. Donations to organizations working on aplastic anemia research also make a significant impact.
8. Can aplastic anemia be prevented?
- While some cases are preventable (e.g., avoiding exposure to certain toxins), many causes are beyond one’s control.
9. What is the role of Team Watience in aplastic anemia awareness?
- Team Watience actively raises awareness about aplastic anemia, supports affected families, and contributes to research efforts for a cure.
10. How can I get involved in supporting aplastic anemia awareness
- You can contribute by donating to relevant organizations, participating in awareness campaigns, or sharing information on social media. Every effort counts!
