We are Team WatienceTeam Watience began as my personal blog and a place to honor my son, Hadi. It served as an outlet for me to write and share my experience with grief about losing a child, becoming a divorcée and having my house catch on fire, all in less than a year.
I am a child loss experiencer, a bone marrow failure awareness/medical research advocate, a Muslim, a Kansan, a mother of twins, the mother of an aplastic anemia warrior, a divorcée, an event manager, and an honest and unintentional writer. Now, I want to speak up, speak out, and raise awareness on pediatric aplastic anemia.
|
Our Mission
EDUCATE
The world about pediatric aplastic anemia
|
CONNECT
parents with resources to navigate this process
|
ADVOCATE
for patients and families alike through legislation and funding
|