Search
  • Saira Sufi

Paediatrics-not a typo, just British.

I have met Congressmen and Senators and even President Obama and Valerie Jarrett. I also have met Bono and The Edge (swoon). However, meeting a fellow rare diseases advocate tops all of those experiences, alright, maybe not the Edge if I am being honest-well, he actually is a rare disease advocate in his own right so... That is why being introduced to Lydia Seiders, Maryland State Ambassador for the National Organization for Rare Diseases (NORD) in the family room at NIH is an indelible memory for me. I could spend hours explaining how awesome she is or how the strength and resiliency of her daughters leaves me speechless, which is hard to do.


Lydia recently asked if she could highlight Hadi's story for the Rare Revolution magazine. I said yes because I was fully aware that she would emphasize the importance of finding a cure for Aplastic Anemia and also would honor my beautiful Hadi.


Check out Lydia's piece by clicking here. Don't you love the sound when you move to the next page?


The Hadi Abdur Rasheed Research Fund


And yes, you learn something everyday, I had no idea paediatrics was spelled differently in Britain. I am curious at to why.




83 views0 comments

Recent Posts

See All

I didn’t wake up in time to go to the 5:15am Orange Theory class so I decided to go on a walk instead. I obviously had to get my Dunkin beforehand. Algonkian Park, along the Potomac River is where I d

I used to live in Arlington, Courthouse to be exact. Zakaria and I recently met up with some friends for brunch in Arlington and a lot of memories hit me. The main one waa seeing that Summer’s Restaur