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About Us

Founded in 2018

Team Watience began as my personal blog and a place to honor my son, Hadi. It served as an outlet for me to write and share my experience with grief about losing a child, becoming a divorcée and having my house catch on fire, all in less than a year.

I am a child loss experiencer, a bone marrow failure awareness/medical research advocate, a Muslim, a Kansan, a mother of twins, the mother of an aplastic anemia warrior, a divorcée, an event manager, and an honest and unintentional writer.

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Now, I want to speak up, speak out, and raise awareness on pediatric aplastic anemia.

Our Mission


the world about pediatric aplastic anemia


parents with resources to navigate this process


for patients and families alike through legislation and funding

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